I know that everyone stated a desire to know how Joe was doing. I thought I would add to that to fill you in on how the kids are doing. Cole has been having a hard time the past two weeks. He has been crying at bedtime over things he wishes that he had done differently with his dad and feels quilty for not doing them when he had the chance to. He feels concerned about what his friends will think about his dad and I think there is a lot of quilt over that normal feeling too. His main fears are about Joe losing more abilities and body changes. The continued loss of his speaking ability has brought home to Cole that this is really happening to his dad. Joe, Cole and I brainstormed about things that they could do together so they could continue to build a strong relationship.

Hannah has been noticing some changes and made some comments, but doesn't seem to have as much anxiety as Cole. She is sad, however and doesn't want to talk to Joe about any of this so she won't make him sad. Her very sweet words one day were "poor daddy".

We are pulling together here in Austin and effective communication is not being limited by speech difficulties.

Replies: 1 Comment

If his quilt is bothering him, we can just change it out...OH! you mean "guilt"...

...it's hard work being this assholic...

Posted by joe @ 08/27/2003 04:44 PM CST